This story was published recently in The Big Roundtable. Ariela had many hospital stays. The time in Pediatric Intensive Care was the longest and the most difficult.
I’m taking this opportunity to raise awareness for Rett Syndrome. RS was Ariela’s underlying diagnosis, though we didn’t know that at the time of this story. About 80% of girls with RS have scoliosis (curvature of the spine). Like Ariela, many of them need the spinal surgery I describe in this story.
Please join me in finding a cure. Scroll down to the end of the story to make a donation to the International Rett Syndrome Foundation (IRSF). All contributions, including The Big Roundtable’s commission, will be donated to IRSF. Thank you. http://bit.ly/1K6nqcm